Cooper Stansbury
David An
Dylan Spalding
Giselle Kerry
Gregory Rushton
J. Neil Otte
Moran Ncabili
Stephanie Dyke
Melanie Courtot
DUO_preferred_label
is_restricted_to
A is restricted to B iff A is a consent code and B is an investigation and A may only participate in instances of a class C, of which B is an instance.
J. Neil Otte
E.g. A dataset is restricted to an instance of an investigation for a specific disease or at geographical location.
DUO:0000010
is restricted to
A disease is a disposition (i) to undergo pathological processes that (ii) exists in an organism because of one or more disorders in that organism. [url:http://ontology.buffalo.edu/medo/Disease_and_Diagnosis.pdf ]
DOID:4
disease
consent code
A data item that is used to indicate consent permissions for datasets and/or materials, and relates to the purposes for which datasets and/or material might be removed, stored or used.
DUO:0000001
consent code
consent code primary category
A categorical data item indicating the primary category the consent code belongs to according to Dyke et al. 2016.
DUO:0000002
consent code primary category
consent code secondary category
A categorical data item indicating the secondary category the consent code belongs to according to Dyke et al. 2016.
DUO:0000003
consent code secondary category
no restriction
This consent code primary category indicates there is no restriction on use.
DUO:0000004
NRES
20180907, Meeting Moran Melanie: This is to be thought about more carefully - what is the intent when using 'no restriction' as usually users still need to be researchers.
Note: the NRES alternative term may be confusing as in the UK it also stands for National Research Ethics Service
no restriction
general research use and clinical care
This primary category consent code indicates that use is allowed for health/medical/biomedical purposes and other biological research, including the study of population origins or ancestry.
DUO:0000005
GRU-CC
general research use and clinical care
health/medical/biomedical research
This primary category consent code indicates that use is allowed for health/medical/biomedical purposes; does not include the study of population origins or ancestry.
DUO:0000006
HMB
health or medical or biomedical research
disease-specific research
This primary category consent code indicates that use is allowed provided it is related to the specified disease.
DUO:0000007
DS
This term should be coupled with a term describing a disease from an ontology, such as the Disease Ontology, HPO, MonDO to specify the disease the restriction applies to.
disease specific research
population origins or ancestry research
This primary category consent code indicates that use of the data is limited to the study of population origins or ancestry.
population origins/ancestry research
DUO:0000011
POA
population origins or ancestry research
research-specific restrictions
This secondary category consent code indicates that use is limited to studies of a certain research type.
DUO:0000012
RS
research specific restrictions
research use only
This secondary category consent code indicates that use is limited to research purposes (e.g., does not include its use in clinical care).
DUO:0000014
RU
research use only
no general methods research
This secondary category consent code indicates that use includes methods development research(e.g., development of software or algorithms) only within the bounds of other use limitations.
DUO:0000015
no general methods research
genetic studies only
This secondary category consent code indicates that use is limited to genetic studies only (i.e., no phenotype-only research)
DUO:0000016
GSO
genetic studies only
data use requirements
Requirements indicate additional conditions set for use.
DUO:0000017
data use requirements
not-for-profit use only
This requirement indicates that use of the data is limited to not-for-profit organizations and not-for-profit use, non-commercial use.
non-commercial use
DUO:0000018
NPU
not for profit use only
publication required
This requirement indicates that requestor agrees to make results of studies using the data available to the larger scientific community.
DUO:0000019
PUB
publication required
collaboration required
This requirement indicates that the requestor must agree to collaboration with the primary study investigator(s).
DUO:0000020
COL
This could be coupled with a string describing the primary study investigator(s).
collaboration required
ethics approval required
This requirement indicates that the requestor must provide documentation of local IRB/ERB approval.
DUO:0000021
IRB
ethics approval required
geographical restriction
This requirement indicates that use is limited to within a specific geographic region.
DUO:0000022
GS-[XX]
This should be coupled with an ontology term describing the geographical location the restriction applies to.
geographical restriction
publication moratorium
This requirement indicates that requestor agrees not to publish results of studies until a specific date
publication embargo
DUO:0000024
MOR-[XX]
This should be coupled with a date specified as ISO8601
publication moratorium
time limit on use
This requirement indicates that use is approved for a specific number of months.
DUO:0000025
TS-[XX]
This should be coupled with an integer value indicating the number of months.
time limit on use
user-specific restriction
This requirement indicates that use is limited to use by approved users.
DUO:0000026
US
user specific restriction
project-specific restriction
This requirement indicates that use is limited to use within an approved project.
DUO:0000027
PS
project specific restriction
institution-specific restriction
This requirement indicates that use is limited to use within an approved institution.
DUO:0000028
IS
institution specific restriction
return to database/resource
This requirement indicates that the requestor must return derived/enriched data to the database/resource.
DUO:0000029
RTN
return to database or resource
method development
An investigation concerning development of methods, algorithms, software or analytical tools.
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000031
method development
population research
An investigation concerning a specific population group.
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000032
Should be paired with the an ontology term representing this population (e.g., xxx).
population research
ancestry research
An investigation concerning ancestry or population origins.
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000033
ancestry research
age category research
An investigation concerning specific age categories.
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000034
Should be paired with the an ontology term representing this population (e.g., xxx).
age category research
gender category research
An investigation concerning specific gender categories.
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000035
Should be paired with the an ontology term representing this population (e.g., xxx).
gender category research
research control
An investigation concerning use of data as reference or control material.
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000036
research control
biomedical research
An investigation concerning health, medical, or biomedical research.
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000037
biomedical research
genetic research
Biomedical research concerning genetics (i.e., the study of genes, genetic variations and heredity).
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000038
genetic research
drug development research
Biomedical research concerning drug development.
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000039
drug development research
disease category research
Biomedical research research concerning specific disease/s
This definition is a placeholder as a result of meetings at ICBO2018.
DUO_0000040
disease category research
general research use
This primary category consent code indicates that use is allowed for general research use for any research purpose.
DUO:0000042
GRU
This includes but is not limited to: health/medical/biomedical purposes, fundamental biology research, the study of population origins or ancestry, statistical methods and algorithms development, and social-sciences research.
general research use
GAZ:00000448
geographic location
A category denoting a rather broad domain or field of interest, study, application, work, data, or technology. Topics have no clearly defined borders between each other.
topic:0003
Topic